Communication Pattern of Dietary Intervention for Autism Spectrum Disorder Children on Facebook

Authors

  • Oktaviana Purnamasari Universitas Muhammadiyah Jakarta

DOI:

https://doi.org/10.21111/ejoc.v7i2.8526

Keywords:

autism, children, dietary intervention, Facebook, virtual community

Abstract

AbstractAutism Spectrum Disorder (ASD) children need appropriate treatment and intervention as early as possible after the diagnosis was made. Besides therapy, diet is one of the interventions that could be carried out by parents, although the positive effects of diet are still debatable among experts. This study aimed to understand the pattern of seeking information related to dietary interventions for ASD children in a virtual community of parent support group in Indonesia. The data was obtained from a virtual community on Facebook, named LRD Member Suar Autisme. This research was qualitative with virtual ethnographic method. The data collection technique was carried out through participant observation on the LRD Member Suar Autisme Facebook account, by examining 178 uploads, 3,569 comments and interview with community members. The results showed that the pattern of seeking information about dietary interventions by community members began with questions or seeking information regarding certain matters. In addition, it can also be identified patterns of presenting information about dietary intervention by admins. Our study showed that dietary intervention was one of the ways suggested by the community to reduce the improper behaviour of ASD children, especially based on the experiences of admins and members in the virtual community

References

Beesoon, G. (2015). The Information Seeking Behaviours of Parents of Children with Autism Spectrum Disorders. https://doi.org/https://doi.org/10.7939/R3ST7F10RCekici, H., & Sanlier, N. (2017). Current nutritional approaches in managing autism spectrum disorder: A review. Nutritional Neuroscience, 00(0), 1–11. https://doi.org/10.1080/1028415X.2017.1358481Hopf, K. P., Madren, E., & Santianni, K. A. (2016). Use and Perceived Effectiveness of Complementary and Alternative Medicine to Treat and Manage the Symptoms of Autism in Children: A Survey of Parents in a Community Population. The Journal of Alternative and Complementary Medicine, 22(1), 25–32. https://doi.org/10.1089/acm.2015.0163Kozinets, R. V. (2010). Netnography, Doing Ethnography Research Online. Sage Publications Ltd.Lucarelli, S., Frediani, T., Zingoni, A. M., Ferruzzi, F., Giardini, O., Quintieri, F., Barbato, M., P, D. E., & Cardi, E. (1995). Food allergy and infantile autism. Panminerva Med, 37(3), 137–141.Mansour, E. (2021). The information-seeking behaviour of Egyptian parents of children with Autism Spectrum Disorder (ASD): a descriptive study. Online Information Review, 45(7), 1189–1207. https://doi.org/https://doi.org/10.1108/OIR-11-2020-0494Mohd Roffeei, S. H., Abdullah, N., & Basar, S. K. R. (2015). Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs). International Journal of Medical Informatics, 84(5), 375–385. https://doi.org/10.1016/j.ijmedinf.2015.01.015Mukhfi, Nugraheni, S. A., & Kartini, A. (2014). Hubungan Praktek Pengaturan Diet Dengan Perilaku Emosional Pada Penyandang Autism Spectrum Disorder ( ASD ) Usia 3-7 Tahun Di Kota Depok. Jurnal Kesehatan Masyarakat, 2(2). http://ejournal-s1.undip.ac.id/index.php/jkmNi, Z., Qian, Y., Yao, Z., & Zhang, S. (2022). Understanding the Adoption of Dietary Interventions Within a Chinese Autism Online Community: A Diffusion of Innovations Perspective. Health Communication. https://doi.org/10.1080/10410236.2022.2048469Nurrahmi, F., & Syam, H. M. (2020). Perilaku Informasi Mahasiswa dan Hoaks di Media Sosial. Communicatus: Jurnal Ilmu Komunikasi, 4(2), 129–146. https://doi.org/10.15575/cjik.v4i2.9215Pennesi, C. M., & Klein, L. C. (2012). Effectiveness of the gluten-free, casein-free diet for children diagnosed with autism spectrum disorder: Based on parental report. Nutritional Neuroscience, 15(2), 85–91. https://doi.org/10.1179/1476830512Y.0000000003Purnamasari, O., Muljono, P., Seminar, K. B., & Briawan, D. (2019). Komunitas Virtual Sebagai Bentuk Dukungan Sosial Bagi Orang Tua Yang Memiliki Anak Dengan Gangguan Spektrum Autisme. Jurnal PIKOM (Penelitian Komunikasi Dan Pembangunan), 20(2), 123. https://doi.org/10.31346/jpikom.v20i2.2180Schiavo, R. (2014). Health Communication: From Theory to Practice. Jossey-Bass. http://books.google.com/books?id=vYxHAQAAQBAJ&pgis=1WHO. (n.d.). Autism Spectrum Disorders. 2017. Retrieved October 10, 2017, from http://www.who.int/mediacentre/factsheets/autism-spectrum-disorders/en/

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Published

2022-12-31

Issue

Vol. 7 No. 2 (2022): ETTISAL : Journal of Communication

Section

Articles

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